Families Resources: Web-Based

Web based resources for Parents and Youth with disabilities

National Dissemination Center for Children with Disabilities

The NICHCY serves the nation as a central source of information on:

  • disabilities in infants, toddlers, children, and youth,
  • IDEA, which is the law authorizing special education,
  • No Child Left Behind (as it relates to children with disabilities), and
  • research-based information on effective educational practices.

http://www.nichcy.org/index.html

En Español
http://www.nichcy.org/spanish.htm

Parents for Public Schools

Parents for Public Schools is a National organization of community-based chapters working in public schools through broad-based enrollment. Invigorated by a diverse membership, their proactive involvement helps public schools attract all families in a community by making sure all schools effectively serve all children.

http://www.parents4publicschools.com/index.html

Exceptional Parent

Exceptional Parent magazine’s online resource continues 30+ award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
http://www.eparent.com/

Parents Helping Parents

Parents Helping Parents is a free public service that provides a searchable online human services resource directory, with a focus on the needs of children; condition and disability files and shareware; and more.
http://www.php.com/

The Family Village

The Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. It includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, and more.
http://www.familyvillage.wisc.edu/index.htmlx

PLUK Training and Conference Calendar

The “Parents, Let’s Unite for Kids!” (PLUK) website provides a calendar of nationwide disability and special education events for parents and youth as well as ongoing web-based training sessions on various issues in real time via the free internet technology Skype.
http://pluk.mt.typepad.com/pluk_training_conferences/

Family Voices

Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
http://www.familyvoices.org/

En Español
http://www.familyvoices.org/espanol/index.php

Council for Exceptional Children

The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
http://www.cec.sped.org

National Center for Learning Disabilities

This is a national, non-profit organization that supports children and adults with learning disabilities, as well as parents and educators dealing with LD.
http://www.ncld.org/

Disability Solutions

Disability Solutions is the free publication which provides current research, medical information, educational strategies, and practical suggestions to readers in language that is easily understood. The main focus is on down syndrome and autism, but they also cover other developmental disabilities.
http://www.disabilitysolutions.org/info.htm

Black Alliance for Educational Options (BAEO)

BAEO is a national, nonprofit, membership organization whose mission is to actively support parental choice to empower families and increase quality educational options for Black children. The ability to choose how your child is educated is a power all parents deserve. BAEO exists to help Black parents understand all of the educational options that exist.
http://www.baeo.org/options/privatelyfinanced.jsp

 
WordTalk
For people with reading and writing difficulties, having text reinforced by hearing it read aloud can be very useful. Specialized programs have existed to do this for a long time, and in many cases are extremely helpful and highly appropriate and should be seriously considered, perhaps in consultation with professional advice where necessary.
WordTalk is a free plug-in developed for use with all versions of Microsoft Word (from Word 97 upwards), which can help people with reading difficulties use Microsoft Word more effectively. It will speak the text of the document and will highlight it as it goes. It contains a talking dictionary to help decide which word spelling is most appropriate. It sits neatly in your toolbar and is highly configurable, allowing you to adjust the highlight colors, the voice and the speed of the speech.
Download WordTalk at http://www.wordtalk.org.uk/ 
 
 
Free Assistive Technology Tool Kit
A number of free resources have been assembled that should be on every classroom and home computer to promote learning for all students based upon principles of Universal Design for Learning. These tools provide improved access and accommodate for learner differences. Additionally, they are fun and engaging! Go to:
 
 
E-ssential Guide: Fathers of Kids with Learning Problems
Fathers play a special role in the lives of their children. In this guide, SchwabLearning.org offers information and support for the added responsibilities dads encounter in parenting a child with learning or attention problems. Here are some highlights of what you’ll find in this guide:
*Learning disabilities expert, Richard D. Lavoie, shares his wisdom on the unique contribution dads can make to their child’s success and well-being.
*Journalist Melinda Sacks, whose son has learning problems, talks about how dads sometimes get left out of their kids’ daily lives, and how — and why — fathers should stay off the sidelines.
*SchwabLearning.org interviews David Sharpe, father of a young adult with learning disabilities, who himself has LD. He describes how dads can model and support a positive attitude, self-awareness, and self-advocacy in relation to learning problems.
*A school psychologist offers dads practical tips for staying involved with their kids; and SchwabLearning.org writer Kristin Stanberry offers strategies for strengthening parents’ partnerships
To download this free guide, go to: http://www.schwablearning.org/articles.aspx?r=987
 
Learning Disability Checklist
Do you suspect that someone you care about may have a learning disability (LD)? Are you unsure of how to articulate your concerns to people who might help?  If so, the National Center for Learning Disabilities (NCLD) is here to help. NCLD’s LD Checklist provides a framework for identifying and addressing specific areas of concern.  Although it does not diagnose learning disabilities, NCLD’s LD Checklist will act as a guide for getting you the help that you need, whether you’re a parent, teacher, or counselor or suspect that you yourself may have a learning disability.  Even if you already know that your child or student has a learning disability, the checklist may show you some areas in which he or she may need some extra help and guidance.
To download a free checklist, go to http://www.ncld.org/content/view/360/342/

 
New England INDEX New England INDEX is based out of The Shriver Center at the University of Massachusetts. Along with MNIP (Massachusetts Network of Information Providers) they have developed a database that includes a wealth of information for making referrals for people with disabilities. It includes programs, doctors, dentists, and other service providers that have experience treating/working with clients with various disabilities. Please visit the website at www.disabilityinfo.org.
ACTE Online This Web page from the Association for Career and Technical Education (ACTE) highlights career and technical education programs in community colleges, high schools, and career centers across the country that are providing outstanding education, superior technical skills, and innovative opportunities to their students and shows how these schools and institutions have found creative solutions to their problems. It aims to spark ideas that can be adapted to other settings and can be searched by state or topic, including ACTE division. http://www.acteonline.org/policy/resources/bpp/
Individuals with Disabilities Education Act (IDEA) Student Guides Information about an audiotape and booklet from the National Dissemination Center for Children with Disabilities designed to help students with disabilities participate in developing their own Individualized Education Program (IEP). http://www.nichcy.org/
Internet Resources for Special ChildrenAn extensive and well-organized collection of links, including links to information on special education and inclusion. http://www.irsc.org/
Guidelines for Accessing Alternative Format Education Materials
Information to help parents and teachers of students in elementary through postsecondary educational programs access alternative format educational materials. http://www.loc.gov/nls/other/guidelines.html
High School/High Tech Provides students with disabilities the opportunity to explore exciting careers in science, mathematics and technology. http://www.dol.gov/odep/programs/high.htm
High School/High Tech Training ManualTraining manual for the High School/High Tech program, which provides careers in technology for youth with disabilities. http://www.disabilityinfo.gov/digovpublic/public/DisplayPage.do?parentFolderId=102
The Office for Civil Rights Transitioning to Postsecondary Education The Office for Civil Rights has posted two letters on its Web site to provide information about the legal rights and responsibilities of students with disabilities as they transition from high school to institutions of postsecondary education: a “Dear Colleague” letter and a “Dear Parent” letter. Also available is a Q&A document entitled Transition of Students with Disabilities to Postsecondary Education: A Guide for High School Educators, and a revised version of Students with Disabilities Preparing for Postsecondary Education: Know Your Rights and Responsibilities. http://www.ed.gov/about/offices/list/ocr/whatsnew.html

·  Kinship Care Legal Resource Center
Kinship care, commonly defined as the "full-time care, nurturing, and protection of children by relatives, members of their tribes or clans, or other adults who have a family relationship to a child," is a growing phenomenon across the United States.

·  Adobe Digital Kids Club
A site created for teachers, students, and parents — digital photography, video, and imaging resources needed to engage students in learning while teaching them important digital communication skills.

·  40 Developmental Assets for Young People
Building blocks of healthy development that help all young people grow up healthy, caring and responsible.

·  WrightsLaw: ADD/ADHD and Eligibility for Services
Do you have a child with ADD/ADHD? Is your child eligible for special education under the IDEA? Many readers think the answer is a clear "yes." Many readers think the answer is a definite "no."

·  25 Reasons to Use Visual Strategies with Students
Perhaps we use something visual to help a student understand a situation. Maybe we provide a visual prompt so a student can accomplish a task more independently.

·  The Parents’ Guide to the Information Superhighway
This guide is for parents who have begun to see that computers and online services will be or already are a part of children’s at school, at community centers, at home, or at the library—and who are looking for some guidelines and advice.

·  Pediatric Hearing Aid Loaner Bank Established by Oticon
Oticon Pediatrics has unveiled a program designed to assist hearing care professionals in providing care for infants and toddlers newly identified with hearing loss.

·  Assuring Better Child Health and Development Electronic Resource Center
The ABCD Electronic Resource Center is designed to provide state policymakers and health care providers with easy access to research and resources that they can use to promote early childhood health and development.

·  Childhood Obsessive-Compulsive Disorder: Guide to Effective Treatment
As adults, we recall our childhood days of avoiding stepping on cracks or repeatedly asking our parents "if we are there yet." Repetitive play, superstitions, and ritualistic games are normal parts of childhood. Yet some parents are faced with the issue of their child’s ritualistic behaviors becoming a problem."

·  DisabilityInfo.Gov introduces new state and local resources map to assist visitors in locating disability-related information close to home
The federal government’s one-stop Web site for disability-related information and resources — DisabilityInfo.gov — today unveiled a new feature, a state and local resources map, designed to assist visitors in finding disability-related information in their own states and localities.

·  NCSER: Secondary School Experiences of Students With Autism (April 2007)
The National Center for Special Education Research at the Institute of Education Sciences has released a new fact sheet on the National Longitudinal Transition Study-2 (NLTS2) entitled Facts From NLTS2: Secondary School Experiences of Students With Autism.

·  Choosing Child Care for A child with Special Needs
Choosing child care for any child can be an arduous and stressful task, but for parents of a special needs child, it can also be a very confusing and emotional experience. Here are some tools that can help.

·  Workshopsolutions.com: Homebuilt assistive devices for the disabled
Workshop Solutions is a voluntary, not-for profit, website . It is maintained and completely funded by the founders. It was established for the purpose of providing a place in space where engineers, technicians, inventors and workshop enthusiasts can display and share knowledge on the assistive devices they have built to better the lives of the disabled.

·  The Child & Family WebGuide
The WebGuide is a directory that evaluates, describes and provides links to hundreds of sites containing child development research and practical advice. Topics are selected on the basis of parent recommendations; they cover all ages, from early child development through adolescence.

·  Information and Special Needs Resources for Parents of Children with Special Needs or Disabilities
Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources.

·  Dyslexia and Driving an Automobile
As an adult, he realized he would have to learn driving the same slow, steady and disciplined way that he learned to read. He was determined to learn however.

·  Video: Reading and the Brain
Reading and the Brain explores how brain scientists are working to solve the puzzle of why some children struggle to read and others don’t.

·  Dyslexia: What Brain Research Reveals About Reading
5 to 15 percent of Americans—14.5 to 43.5 million children and adults—have dyslexia, a learning disability that makes it difficult to read, write, and spell, no matter how hard the person tries or how intelligent he or she is.

·  Dyslexia: Beyond the Myth
The common myths about dyslexia are that dyslexics read backwards and reverse words and letters. While these characteristics may be part of the problem with some individuals, they are NOT the most common or most important attributes.

·  Dyslexia Basics
Dyslexia is a language-based learning disability. Dyslexia refers to a cluster of symptoms, which result in people having difficulties with specific language skills, particularly reading. Students with dyslexia may experience difficulties in other language skills such as spelling, writing, and speaking.

Organizational Problems and the Beginning of the School Year
Some children with learning disorders have great difficulty learning to read…others read fluently. Some kids struggle with math…others are gifted in this area. Like the proverbial snowflakes, each LD child is different with a unique pattern of strengths and struggles.

·  College options for students with intellectual disabilities
Find internet resources; answers to frequently asked questions related to developing or expanding services for students with intellectual disabilities in college settings.

·  PEPNet: educational opportunities for individuals who are deaf or hard of hearing
PEPNet’s national network of regional centers provides resources, information, in-service training, and expertise to enhance educational opportunities for individuals who are deaf or hard of hearing and their families.

·  Back-to-School Transitions: Tips for Parents
The key to a child’s success in school is educational responsibility.

·  Video: Growing and Learning in Preschool
You’ll see how a preschool curriculum based on solid research builds school and life-related skills, why well-qualified teachers are so important, and how play is integrated into learning.